Description
Please DO NOT list the questions with your responses. Your paper should follow APA guidelines and be in paragraph format with the answers to the questions within your paragraphs.
1. Put yourself in the shoes of these parents – what would you do? Do you have any suggestions for them?
Discuss the impact of the child’s disability on the family functions. Go back to Grant and Ray and link text information here.
2. If you were the advocate the family, how would you support them? How does this situation impact the siblings?
3. How would the school normally become involved with the family and what classification and services should the school district be providing for a child with such a disability?
What services or agency referrals should the school district be providing for the child?
4. Reflecting on the issues the family must deal with on a daily basis and on their future concerns, identify appropriate social service resources at the local level, regional, and federal levels as well as professional agency information that can provide some relief for these families.
You must use this
This link for book you must refer to chapter 6-7-8 Grant, K.B. & Ray, J.A. (2019). Home, school, and community collaboration: Culturally responsive family engagement. Sage: CA.
https://drive.google.com/file/d/1Dq7gZPQPoH7-LmSkm_bQV69ztaI2L96u/view
The summery of film from https://en.wikipedia.org/wiki/Lorenzo%27s_Oil
https://www.rogerebert.com/reviews/lorenzos-oil-1993
I need academic writing essay without any scientific plagiarism, clear and correct grammar and spelling writing, 4 pages of Double Line APA 6 Style – USA English
Structurally and Culturally Diverse Families, and the Child at Risk Lit & Media Assignment
View the video, Lorenzo’s Oil. In the past, students have found this movie on Amazon Prime and on YouTube. You can also check your local, public library.
The film is based on the true story of Augusto and Michaela Odone and their son Lorenzo. In 1984, Lorenzo came down with adrenoleukodystrophy (ALD), a rare inherited disease. Doctors said that he would lose all his functions and die within two to three years. Refusing to accept this grim verdict, the Odones set out on a mission to find a treatment for ALD and to save their child. In their quest for a treatment the Odones often clashed with doctors, scientists, and support groups, who were skeptical that anything could be done about ALD, much less by laypeople. Their relentless struggle tested the strength of their marriage, the depth of their beliefs, and the boundaries of conventional medicine.
The Odones visited medical libraries, reviewed countless animal experiments, badgered researchers, questioned top doctors all over the world, and persisted until a solution came to them in a moment of inspiration. They commissioned a special type of oil from a British firm, which normalized the accumulation of very long chain fatty acids in the brain, the hallmark of ALD.
The film ends on a positive note, showing several healthy children who, having followed a course of treatment with Lorenzo’s Oil, remained symptom-free. The conclusion relates that Lorenzo can communicate again by a modified sign language and that Augusto Odone was awarded an honorary Ph.D. for his pioneering work in researching and discovering a significant treatment for ALD. In the second chapter of the story, the Odones founded The Myelin Project in the hope of finding a way to restore the myelin sheath, which is destroyed in ALD and a host of other myelin diseases, such as multiple sclerosis. If this vital substance can be restored, patients like Lorenzo may regain function and eventually lead a normal life.
Sadly, Lorenzo lost his battle with ALD and died on May 30, 2008, one day after his 30th birthday. He is survived by his father, Augusto, his brother Francesco and sister Cristina. His mother, Michaela (portrayed in the movie by Susan Sarandon), died June 10, 2000, of lung cancer (Sources: Moser, Hugh, Ann Moser, Steven J Steinberg, & Gerald V Raymond. “X-Linked Adrenoleukodystrophy.” GeneReviews. 27 July 2006. GeneTests. 6 Feb 2009).